Evaluation and analysis of the healthy life quality of patients with Crohn's disease
克罗恩病患者的健康生活质量评价分析

摘要

目的 分析克罗恩病患者的健康生活质量评价。方法 将理论框架设定为“结构-过程-结果”三维质量结构模型（Donabedian），构建过程中基于优质护理服务评价标准，运用文献资料法、层次分析法、半结构式访谈、形成专家咨询问卷等方法，采用德尔菲法进行两轮专家咨询并分析结果。消化内科单病种克罗恩病健康生活质量评价体系。评价标准的理论框架为三维质量结构模型，包含了克罗恩病健康生活质量的各个方面，从过程层面、结构层面和结果层面，对克罗恩病患者所获得的健康生活质量进行更全面、更精确的评价。结果 共将4项研究纳入，将22个研究结果提炼出来，然后整合为7个主题，在健康生活质量的6个领域（躯体功能、心理情感功能、性功能、社会功能、感知健康与幸福、学习工作能力）进一步纳入。结论 本研究将有效依据提供给了克罗恩病患者的健康生活质量评价。

Abstract

Objective: To analyze the evaluation of the healthy life quality of patients with Crohn's disease. Method: The theoretical framework was set as a "structure-process-result" three-dimensional quality structure model (Donabedian), and the construction process was based on the evaluation standards of high-quality nursing services, using literature data method, analytic hierarchy process, semi-structured interviews, and forming expert consultation questionnaires And other methods, using the Delphi method to conduct two rounds of expert consultation and analyze the results. Evaluation system of healthy life quality of single disease Crohn's disease in Gastroenterology department. The theoretical framework of the evaluation standard is a three-dimensional quality structure model, which includes all aspects of Crohn’s disease healthy life quality. From the process level, the structure level, and the result level, the quality of life obtained by Crohn’s disease patients is more comprehensive and comprehensive. More precise evaluation.
Results: A total of 4 studies were included, 22 research results were refined, and then integrated into 7 themes in 6 areas of healthy life quality (physical function, psycho-emotional function, sexual function, social function, perceived health and happiness , Learning and working ability) to be further included.
Conclusion  : This study will provide effective evidence to evaluate the quality of healthy life of patients with Crohn's disease.