参考文献 References
[1] 钟丽,冯小艳.造口病人延续护理的研究进展[J].全科护理,2020,18(31):4282-4284.
[2] Siegel RL, Miller KD, Fedewa SA,et al.Colorectal cancer statistics[J]. CACancer Journal for Clinicians,2017, 67: 177-193.
[3] Geng Z, Howell D, Xu H,et al.Quality of Life in Chinese Persons Living With an Ostomy: A Multisite Cross-sectional Study[J].Journal of Wound Ostomy Continence Nurs, 2017, 44(3):249-256.
[4] Santos VL, Augusto FS, Gomboski G.Health-Related Quality of Life in Persons With Ostomies Managed in an Outpatient Care Setting[J].Journal of Wound Ostomy Continence Nurs, 2016, 43(2):158-64.
[5] Corvese F, Giordano V, Alvaro R,et al.Sociodemographic characteristics and self-care management knowledge of patients with an ostomy[J].Br J Nurs, 2020, 29(22):S20-S26.
[6] Villa G, Mannarini M, Della Giovanna G,et al.A literature review about self-care on ostomy patients and their caregivers[J].International Journal of Urological Nursing, 2019, 13(2): 75-80.
[7] Bulkley JE, McMullen CK, Grant M,etal. Ongoing ostomy self-care challenges of long-term rectal cancer survivors[J].Supportive Care in Cancer, 2018, 26(11): 3933-3939.
[8] Hu A, Pan Y, Zhang M,et al.Factors influencing adjustment to a colostomy in Chinese patients: A cross-sectional study[J].Journal of Wound,Ostomy and Continence Nursing, 2014, 41(5): 455-459.
[9] 王泠,杨国艺,李硕.肠造口患者家庭护理的研究进展[J].护理管理杂志,2019,19(12):839-844.
[10] Aggarwal B, Liao M,Mosca L. Medication adherence is associated with having a caregiver among cardiac patients[J]. Annalsof Behavioral Medicine, 2013, 46(2): 237-242.
[11] Trivedi RB., Bryson CL, Udris E,et al. The influence of informal caregivers on adherence in COPD patients[J]. Annals of Behavioral Medicine, 2012, 44(1):66-72.
[12] Villa G, Vellone E, Sciara S,et al.Two new tools for self-care in ostomy patients and their informal caregivers: Psychosocial, clinical,and operative aspects[J]. International Journal of Urological Nursing, 2019, 13(1): 23-30.
[13] Giordano V, Iovino P, Corvese F,et al. Caregiver contribution to self-care and its associated variables among caregivers of ostomy patients: Results of a cross-sectional study[J]. J Clin Nurs, 2022, 31(1-2): 99-110.
[14] McMullen CK, Schneider J, Altschuler A,et al. Caregivers as healthcare managers: health management activities, needs, and caregiving relationships for colorectal cancer survivors with ostomies[J]. Supportive Care in Cancer, 2014, 22(9): 2401-2408.
[15] Altschuler A, Liljestrand P, Grant M,et al. Caregiving and mutuality among longterm colorectal cancer survivors with ostomies: Qualitative study[J].Supportive Care in Cancer, 2018, 26(2): 529-537.
[16] 樊菲菲,杨爱军,江雪,等.肠造口病人家庭主要照顾者照护体验质性研究的Meta整合[J].循证护理,2022, 8(05): 588-593.
[17] 刘佳,李雪飞,王红花.肠造口患者主要照顾者照顾准备度现状及影响因素研究[J].护理管理杂志,2020,20(10): 706-710.
[18] 柯丹丹,罗洁,洪轶颖,等.膀胱全切术后行腹壁造口患者照顾者创伤后成长体验的质性研究[J].中华护理杂志,2022,57(03):294-300.
[19] 张六一,张静平.造口病人家属的照顾负荷及护理进展[J].护理研究,2012,26(31):2892-2894.
[20] 林宁,林小丹,陈淑珠,等.尿路造口患者主要照顾者负担水平及影响因素分析[J].护理与康复,2018,17(01): 14-17.
[21] Sun V, Bojorquez O, Grant M,et al. Cancer survivors' challenges with ostomy appliances and self-management: a qualitative analysis[J]. Support Care Cancer. 2020, 8(4): 1551-1554.
[22] 刘倩倩,田丽,田洁,等.尿路造口患者照顾者照顾能力及影响因素研究[J].护理管理杂志,2021,21(06): 397-401.
[23] 刘鑫,江锦芳,覃彦珠,等.215例结直肠癌造口患者家庭主要照顾者照顾能力现状及影响因素分析[J].护理学报,2021,28(07):53-58.
[24] 李月霞,沈丽娟,邹晓月.心力衰竭患者照顾者在自我护理中的贡献及体验[J].解放军护理杂志,2018, 35(02):53-55+76.
[25] De Maria M, Vellone E, Ausili D,et al.Self-care of patient and caregiver DyAds in multiple chronic conditions: A LongITudinal studY (SODALITY) protocol[J]. Journal of Advanced Nursing, 2019, 75(2): 461-471.
[26] Giordano V, Nicolotti M, Corvese F, et al. Describing self-care and its associated variables in ostomy patients[J]. Journal of Advanced Nursing, 2020, 76(11): 2982-2992.
[27] 孙婧,罗彩凤,贾静,等.基于时机理论对肠造口患者照顾者不同阶段照护体验的质性研究[J].现代临床护理,2018,17(01):33-38.
[28] 王小英,邱云婵,贺娅楠.基于微信公众号的肠造口患者健康教育内容设计与研究[J].卫生职业教育,2020, 38(23):127-130.